Thursday, May 28, 2009

If you have trouble reading the writing with the pictures, just click on that "page" and it will enlarge it to full screen for you, then just click back and it will take you back to the blog.
Have a great day!
Sharon
After mom moved in with me in July 2007, we started working on her memories of childhood and up through the time she married dad. (1933 to 1953). I put it all together for her and she gave a copy to her daughter, Sandy, and her 3 grandchildren for Christmas that year.
I have a few more things she has written down, that I need to add, and then we need to continue on with the "rest of her life". I hope each page is readable. Hopefully this will give you a glimpse into moms life, prior to dementia. As I get more done, i will post them, too, but that may be a while.
Hope you enjoy the trip down memory lane.

moms memories



moms memories



moms memories mom and her siblings and parents



moms memories



moms memories



moms memories



moms memories



moms memories



moms memories



moms memories



moms memories








moms memories



Monday, May 25, 2009

moms memories



moms memories



moms memories



thank You!

I'm stepping away from talking about mom for a minute today.
I want to take time on this memorial day, to say thank to all the men and women who have fought for our freedom. To all the families, who have lost a loved one in battle, may God Bless You for your sacrifice.
My dad served in the Army from 1951-1953. he was stationed in Korea, a part a Quartermaster Unit. Dad was in line with 1,000 men board buses to go to the front line, when his name was called. because dad could type 60+ words a minute, he became the company clerk. He passed secret documents, earned the good service medal, among other things.
I am so thankful God spared my dads life, but many were not that fortunate.

God Bless each soldier who is standing in the line of duty (battle) so that we here in America can live freely and worship our Heavenly Father freely.

THANK YOU SERVICE MEN AND WOMEN!!!!!!!!!!!!
We salute you today!!!!!!!!!!

Saturday, May 23, 2009

Mom as a little girl

I decided to try and upload a picture tonight to see if it works. :) Mom was a little girl in this picture, probably around 3. Her nickname was "Blondie", because her hair was so blond, it was almost white. Her hair was dark, almost black, for as long as I remember. And my hair has done the same thing. I was very blond when little, and now, (if I would leave it alone :) ) my hair would be as dark as mom's.
I have some pages of mom's memories I will try to uplaod on here soon, but tonight, I should get to bed. Mom had a lazy day today, resting and relaxing as the next 2 will be long ones, with it being memorial weekend.

Please thank a soldier this weekend. For standing tall for America and for fighting for our freedom, so that we may live in the land of the free, and the home of the Brave, and worship the one true living God, without fear.

Thursday, May 21, 2009

Thanks

It has been a week of good happenings. Mom has really done well this week,until this evening, when the "help me's" took over again. It has been wonderful to actually carry on a bit of a conversation with her, rather than always hearing the yes or now answers and the help me!
I am exhausted tonight, after a week of late nights, and my hip hurting (I need to make another trip to the chiropractor) and tonight I was very tired when mom started with the Help ME!'s. I wanted to scream at her........STOP......but instead I forever repeated "you are okay".........even though I "sounded" calm, I was irritated on the inside.
Which leads me to all the comments or responses I have received this week. thank you so much, everyone, for encouraging me, for lifting mom and I up in prayer, for saying I have a lot of patience. I don't feel some days like I have much patience at all. some days, especially when I am tired, I would like to "throw in the towel", but I know mom still needs me.
Sometimes it is hard, when I look back through old pictures, and see the "mom" she once was. The hard worker, the woman of much faith, the loving wife, mother, grandmother, the giver, etc etc etc. I want that mom back!!!!!!!!! But, I know that can't be. I want the mom back who could always pick a chicken faster than me.....even when she was 60. the mom who could out work me when she was 60 and I was 32. Mom was from the "old school".
I wouldn't trade my mom for any other in the world. God chose her for me, long before even time began, knowing even then that someday it would be "my turn" to take care of mom.
I am blessed. I may be stressed at times, but I am always blessed, because I have a wonderful mom, who loved me, raised me to believe that God will make a way...........for all things. and I had a wonderful dad, too, who is now with Jesus!

Ephesians 2:10 For we are God's workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do.

God Bless each of you!

Monday, May 18, 2009

Flowers for Mothers day.... update from5/12/09

Last week I brought mom home flowers for mothers day. She was with me when we got the red roses, then later in the week I added yellow roses to them. When I came home for lunch on Friday, mom greeted me at the door, and said, "I want to give you a hug and kiss for the flowers". that was a "cherished moment". Then Saturday, mom refused to get out of bed, and hollered "help" off and on all day. She did get up at 1:45 AM, and wanted breakfast sat. night/Sunday morning. then she was up at 5:30 AM and got herself dressed for church. She had a pretty good day Sunday, going to AM and PM church with me. But, Monday was not good. She was in bed when I left Monday morning, and told me she would get up when Deanna got there. When I came home for lunch she was hollering Help Me! and kept going back and forth to the bathroom but never had to go. I went ahead and gave her a gabapentin that I usually give her at supper, and within an 30-45 minutes she was calming down. I read to her from the Psalms and read her favorite Psalm (46:10) Be still and know that I am God. Deanna came back and stayed all afternoon and said mom rested well, and was asleep when I got here at 5. We went to see Dr. Scheuffler today, and we are going to give her 2 gabapentin (800 MG) at bedtime, instead of 400. She now takes 1200 MG a day , and it will be upped to 1600MG. He said the maximum dose is 3600MG, so we are still safe. She had a great day today, and wanted to go to bed at 8:30 , so she is there now. I think this cloudy damp weather is a factor, too. Anyway, Dr. Scheuffler is referring us to Dr. Olmstead (he knows him) and I am just waiting to hear when the appointment is. He said neurologist are few in number, so it could take a bit to get in. Dr. Scheuffler also said if Dr. Olmstead can not help us, maybe he will know someone who deals alot with Alzheimers, and he can refer us to that person. dr. Scheuffler is all for helping mom however we can, and like me, he is against having her so totally sedated that she cannot enjoy life still. The blessings I see are that so far, she has no desire to wander off, or go anywhere. and the worst word she has said so far is "dang-it". So many dementia patients cuss a blue streak. I have also decided that mom will have fresh flowers in her room all the time. what is 10$ a week, when she loves the fresh flowers. She talks about her "roses" every day. they are setting by the TV so she can see them from her bed or the chair. I have bought blue paint to paint her room, and brighten it up, so am hoping to start painting Friday evening. I also need to get the garden out, but it has rained and misted here all day.
From a Journal I had started offline last August.

Aug 13, 2008
Brought mom home from the hospital, after spending 16 days in the Behavioral Health Unit there. They changed some of her meds.....added some, deleted some.
She is having a pretty good afternoon..........not real talkative, but seems very content to be home in her own bedroom.

Aug 14, 2008 Thursday
I stayed home with mom all day.
We got her hair done this afternoon, and we had some pretty good conversations today.. She had her moments of not talking, or being zoned out, but not bad.
It was a bad night for trying to get her to sleep. She fought me and fought sleep.


Aug 15, 2008
Friday
had a great morning
stayed home by herself and napped and read the cappers. Bryanna spent the afternoon here with mom. She rested all afternoon.
Isaac joined us for the evening and night. He said "Hi MeMa" when he got here and mom said Hi mema back :) That cracked Isaac up! But she knew who Isaac was.
Trying to get her to bed was a chore again.
She came down the hall in the dark to tell me at midnight that Dwayne and crystal and the grandkids were outside but when she got to the door they were gone.........she had gotten out of bed, put her teeth in and put her robe on. I took her back to bed and told her no one was there. She said Wanna bet 50 bucks? I finally convinced her no one was there, so she got in bed, and I curled up in her recliner to sleep there if need be..........and she said, okay, Sharon, I’m fine I can go to sleep now and she was out in 3 minutes !

Aug 16, 2008 Saturday
not the best day. She was not good at conversing, but not bad, either. She knows she is 75, and I had to tell her I am 48, but then she knew sandy was 3 years older than me and Calvin 2 years older than sandy.
Went to Cydnee’s b/d party, and mom pretty much just sat and looked around.... Cydnee did hug her.
It is 10:25 p.m. and mom is not asleep, but she is very coherent and said as long as her music plays she will be able to get to sleep.
She was like, tonight is Saturday already? She really is looking forward to going to church in the morning.


Aug 17, 2008
Sunday
mom was up when I got up at 8;30
she ate breakfast then we went to church. She didn’t seem to know for sure where we were going but she knew what Bible was hers and she sang the songs and she followed along with the scripture when Bro. Larry was preaching. But then it was like she was gone again.
She rested all afternoon, and now is in bed.


August 22, 2008
This past week has been up and down. Mom had a great Monday and Tuesday was good, too. She carried on a conversation, and was more with it, than not. Sandy, Rachel and Abbye were coming to see her Wed. Afternoon, so Wed. Morning she was up before me, had her clothes laid out to get dressed after her shower, so she would be ready to see the "family". But, by afternoon, when they got here, Sandy said she just stared and did not acknowledge them. Sandy brought her some new shoes.
Thursday we got her hair done, and then Thursday night I thought she was in bed, asleep, but about midnight, she came down the hall and turned the light on......and said, look Sharon, the other pair of shoes Sandy got me, fit better than the pair I had on today. I took her back to bed, and got her settled, then she said, "ok, Sharon, I won’t pull any more stunts tonight." and she was asleep shortly.
Today, Friday, she was so/so. Isaac was here all day with her, and when home health came this morning, they got her bedding changed, and her room cleaned, and she was dressed.
Tonight we played chinese checkers with her. She won the first game, but only because she cheated............I was just thrilled she was playing, so I didn’t care. She seemed more with it the second game, but the way she had her marbles, and mine and Isaacs were, I was able to cross the whole board and take a marble home in one move. I looked at mom and said, look what I just did............and she said "you farted".... which was not true.....................Isaac and I laughed and laughed and mom joined in with us............... She has done several things that tend to crack Isaac up........
Like at supper tonight, I fixed chicken fried steak, mashed potatoes and gravy and green beans. There were a few dark choc m&ms left on the table in a bowl.........when I took moms pills to her, I noticed the lid was off the bowl and it was empty...............then I saw what she had done..........she had dumped the m&m’s on her potatoes and gravy..............and she ate every bite of it.........she had very colorful gravy as the m&ms melted...........:)


Aug 26, 2006 Tuesday.
Mom had a great day today
up at 6:20 am after going to bed after 11 last night
ate breakfast went back to her room by herself and turned on her tv to watch it
was dressed and ready for lunch at 1
spent afternoon by herself cause no one could come stay with her.
Watched tv and napped in afternoon
carried on a conversation after I got home from work
said she was glad casino was not coming to wellington
"promised" to go to bed tonight and stay there.
It is 9:15 and she is in bed...........and acting like she will not be getting up.
Thank you, Heavenly Father, for such a good day with mom.


Jan 11, 2009
Wen to church this morning, and I was rushing around as today I am having a birthday party for mom. So I had a ton of food to load, and mom dressed herself in the clothes I laid out. We got to church on time, and Pastor was in the middle of his sermon, when mom looked at me, placed her hand under her breast and said, "I forgot my bra". Needless to say, I did not hear the rest of the sermon. I was jsut glad she didn’t’ say it very loud.


Feb 2, 2009
Mom threw up this morning, and I later found that she had thrown up in bed, possibly in her sleep. I decided to stay home with her, as she was not keeping any food down.
She would not sit down or rest. She was up and moving all over, wanting to go to town, to church, etc. Deanna came and showered her, and was loading some laundry to do for me, when we realized mom was outside. In the car. She would not come in so I drove her around the block thinkign that would help..................Deanna left and I settled in to do a few things..........only to find mom in the car again with Merci...and her Bible....... so I grabbed Gracie and the keys and we went to church. That is where mom wanted to go.........we got there and and she went and sat in the sanctuary for about 5 minutes, and the dogs ran around the fellowship hall. Then I said lets go home, and mom sadi okay, and we came home. I fed her a cup of broth for lunch, and now she is resting in her recliner. I think I will go takea nap. :)



These are all I have recorded in this one place. the other thigns are ina notebook, of which I ahve to locate since I laid it somewhere while cleaning :).

Some days can be very stressful, but after the day I had today, May 18th, 2009, with her, I can handle the stresses. Today was a GREAT Blessing.
May 18, 2009
Today was an awesome day. This is the day that the Lord has made, we will rejoice and be glad in it.
I got off work at 4 p.m., so I could go to the dentist in Caldwell. I don't care for dentist, but I have lotst of teeth work to be done :(
I stopped at the house to get the truck. I don't take the van out of town right now. It needs work, too. :(
When I arrived home, mom was sitting on the porch with the dogs just enjoying the beautiful day. She said, "I needed some fresh air, so I came outside." On a whim, I asked her if she would like to ride with me to the dentist. She said yes.
We loaded up, and she loved the ride. She looked at all the wheat fields as they are starting to get a yellow tint to them (unfortunately several we saw have dead areas from all the rain, but we saw some fields that looked good, too) She remarked on cattle and other things we saw. She said when we were almost to Caldwell, "I am glad I came" We carried on a conversation of more than just "yes, no, or help me" and it was wonderful. She wanted to wait in the truck while I went in, but after being there 30 minutes, I went out and she wanted to come in, so she came inside and sat and read a Country magazine and was very good:). We went to Caldwell thru South haven, but came home the other way, so we could stop at McDonald's for her cheeseburger and sprite. Her comment was, "I have been good and patient waiting on you today, so i can have my CB and sprite. I said SURE!.
We are now home and she has eaten and is watching wheel of fortune.
These are the days I cherish, knowing that not all days are this good. i only heard help me once, and that was becasue she needed help getting the straw in her sprite. :)

On another note...........We were trying to get in to see a neurologist in Wichita, to see if she really has ALZ/dementia, or if maybe all the medications she is on, is part of the problem. Well, this neurologist does not take medicaid, so they will not make an appointment, even if I am willing to pay what Medicare does not. So we are back to round one. i will call her dr. here tomorrow and see if he knows of someone else. I have also talked with Rachel and will talk with Sandy and Karen to see what they think.
I woudl truly love it if we coudl do somethign to help her have some better days. there are just somethings she does, that are not true to ALZ/denmentia, so I question what is going on. She is my mom, and I want what is best and I want her to have as good a quality of life as possible, for as long as possible.
There is lots more I want to write, but trash and dishes are calling right now. And laundry :)
be back later.

Saturday, May 16, 2009

Mom and Alzheimers

I decided to start this blog so I can write down my thoguths about alzheimers and mom and the affect it has on both of us, etc. I want to recod the good times and bad, and the times I need to "hold a memory" close, because with ALZ time can be of the essence.
I am really tired tonight as Isaac and I worked hard outside today. Mom spent 4 hours sitting in the fresh air and sunshine while we worked. She talked to us and commented on the progress we were making.
It is 8:45 PM now, and she is tucked in bed, so I am headed to relax and try to get to sleep earlier tonight than previous nights. My body is telling me I overworked it today. Hope I didn't mess my hip up agian. Just went to the chiropractor Wednesday.
Well, that is all for now. I will share some past stuff when I have time to get it on here,so it is all in one place.
Bye for now
I decided to start a blog where I can share the ups and downs of "raising" my mom who has Alzheimers (ALZ).
It has been a difficult road a times, and at other times very rewarding.
It is especially hard to watch as mom slowly loses her memory of different things.
I want to be a good daughter, but at times I find it very hard to be patient, especially when mom is repeatedly saying "help me", for no reason. As with a child who "cries wolf" one to many times, you cannot let it go by with mom, as it might truly be something important. It can get hectic and frustrating, but if Ican walk away from it for a moment or two, then I can handle it again.
I found the other day that reading to mom from the Pslams calmed and relaxed her. Her faviorite verse is Psalm 46:10--Be still and know that I am God, I will be exalted among the nations.
later as I thought about that verse, I realized God was speaking to me, too. He was telling me to BE STILL, and KNOW THAT HE IS GOD!.. He is in control of all situations, of all things, if we will but let Him have that contorl. I titled my blog longing for patience, becasue I am not a very patient person, and I long to be more patient, not only with mom, but with everyone.
Now that mom is tucked in for the evening, I think I will go take a nice hot, bubble bath to soothe my aching muscles (Isaac and I worked in thr yard 4-6 hours today and mom sat on the porch in the rocker and watched and talked to us).
Goodnight for now.

To begin, I know if some folks read this they will be very mad at my position. However, I ask that if you read this and comment, be respect...